The Gene Partnership (TGP) at Children’s Hospital Boston is now fully open for business, just in time for TGP Executive Director Dietrich Stephan, PhD, to hit the road to TEDMED, where he’ll be promoting TGP’s mission of “genetics for everyone.”
TGP was launched to harvest the fruits of the Human Genome Project–coupled with information technology, clinical data and other contextual information–to power the next wave of medicine. It approaches this goal differently than most personal genomics ventures, treating participants not as subjects but as partners. Patients can control what information they wish to share with a research project, and what information they receive back — benefiting from research findings directly and confidentially, free of charge.
Every child and family that visits Children’s can enroll, allowing researchers access to a rich, unparalleled repository of genetic information. Combined with faster gene-sequencing, mapping and data-crunching tools, the goal is for patients’ diseases to be diagnosed earlier and for new treatments — perhaps customized to the patient’s genome — to be moved to the market sooner.
Who would you rather give your DNA to?