Stories about: Care Mapping

Caremap: Mobile app lets families track their children’s health, their way

Caremap
Carson Domey fires up Caremap

Family caregivers — as well as older children and adolescents — now have a powerful health data tracker. With a free iPhone app called Caremap, they can securely store and organize vital medical information, share it with health professionals, track health metrics important to them and gain insights to inform care.

For Michelle Domey, that means keeping close tabs on her son Carson’s Crohn’s disease. It means understanding early warning signs and what triggers a flare, like not getting enough sleep. “When he has a flare, the app is something we could take into an appointment,” she says. “We have historical data that can show us what may have triggered it.”

Available for free in the iTunes App Store, Caremap was developed by Boston Children’s Hospital’s Innovation & Digital Health Accelerator (IDHA) in collaboration with Duke Health System. It was built using Apple’s open source CareKit framework.

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15 health care predictions for 2015

healthcare predictions
2014 continued to see massive evolution in health care—from digital health innovations to the maturation of technologies in genomics, genome editing and regenerative medicine to the configuration of the health care system itself. We asked leaders from the clinical, research and business corners of Boston Children’s Hospital to weigh in with their forecasts for 2015. Click “Full story” for them all, or jump to:
The consumer movement in health care
Evolving care models
Genomics in medicine
Stem cell therapeutics
Therapeutic development
New technology
Biomedical research

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What is meaningful patient engagement?

"Engagement" can take many forms, not all of them authentic. (Jim Bowen/Flickr)
‘Engagement’ can take many forms, not all of them authentic. (Jim Bowen/Flickr)

Richard Antonelli, MD, is a primary care pediatrician and medical director of Integrated Care and Physician Relations and Outreach at Boston Children’s Hospital. He also co-chairs the Task Force on Care Coordination for Children with Behavioral Health Needs, a group within the Massachusetts Child Health Quality Coalition.

Tools and apps designed to engage children and families in their care are proliferating. But are they meaningful? At its best, patient engagement isn’t just technology that brings lab results and medication reminders to a patient’s or parent’s iPhone. It’s about creating a relationship in which families are able to specify their care needs; clinicians and families learn from each other; and patients and families are able to manage their own care.

Patients and families are not just consumers of health care—they define goals and priorities. Their insights are essential.

A powerful tool for supporting a meaningful family/provider relationship is the Care Map. It was developed by Cristin Lind, parent of a child with special needs, who found herself in the role of care coordinator,

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