From a series on researchers and innovators at Boston Children’s Hospital
Margaret McCabe, PhD, director for nursing research in the medicine patient services at Boston Children’s Hospital, is an unlikely hacker. A former techno-phobe and chronically fatigued mother of four, McCabe didn’t think she had time for another project.
Some opportunities, however, are too good to resist. That was the case when McCabe, who thrives on interacting with people who think outside of the box, started brainstorming with colleagues about Hacking Pediatrics.
She signed as a co-founder of the group, an organization of self-described geeks from Boston Children’s and MIT’s H@cking Medicine committed to hacking the status quo in pediatric health care. “It’s the attraction to innovation,” she confesses.
McCabe describes the lure of hacking and the role of nurses in innovation. …
Israel Green-Hopkins, MD, is a second-year fellow in Pediatric Emergency Medicine at Boston Children’s Hospital and a fierce advocate for innovation in health information technology, with a passion for design, mobile health, remote monitoring and more. Follow him on Twitter @israel_md.
The Centers for Medicare & Medicaid Services (CMS) defines patient engagement as having two primary objectives: to enable patients to “view online, download and transmit their health information” and to enable providers to conduct secure messaging with patients.
In 2007, focusing largely on these goals, Microsoft launched HealthVault—a Web-based electronic health record designed to fit the needs of both patients and providers. Countless private and public institutions have followed, including Boston Children’s Hospital.
But aside from satisfying regulatory requirements, are these interventions the improved engagement that patients are demanding? How can we be transformative in our approach to care and create an environment that is receptive to the engaged patient?
We first need to reconsider what it means to maneuver through the health care system as a patient. …
When children return home from the hospital after surgery, parents can be overwhelmed by the written information and instructions for follow-up. At the MIT Media Lab’s Health and Wellness Hackathon earlier this year, the focus was on empowering patients to take an active role in their health. As my colleague Brian Rosman described, our team from Boston Children’s Hospital attended and spent two weeks developing “Ralph,” a mobile application for managing post-operative care that incorporates an avatar and features of gaming to engage and motivate children to follow their regimen. I was one of the primary programmers for our group.
We won third place, working alongside five other talented teams. Here are some snapshots of what they were up to — helping patients manage asthma, diabetes, pain, cardiac rehab and more. …