Stories about: home care

Coordinated care for children on respiratory support saves money

CAPE program staff serve children who require home respiratory support.
Sofia Wylie, then age 2, is enrolled in the CAPE program and was part of the study. (Courtesy Natalia Wylie)

Children with high-risk, complex conditions — such as those who need ventilators to breathe — often receive disjointed care, scattered among many providers. This leads to emergency room visits and hospitalizations that could have been avoided. And once in the hospital, many children remain longer than they should for lack of good home care.

At home, families face daunting challenges. They must learn to use and maintain their children’s medical equipment and handle emergencies. They often have little or no access to home nursing services. Private insurance rarely covers home nursing for more than a limited number of hours, and Medicaid pays too little to attract qualified nurses. Many parents end up quitting their jobs to provide care.

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Housecalls: Back to the future

This week I attended an Innovator’s Forum, part of a new Innovation Acceleration Program at Children’s Hospital Boston. The program, spearheaded by the hospital’s new Chief Innovation Officer, Naomi Fried, PhD, seeks to empower clinical innovators in developing and testing their novel ideas by providing resources and support. The monthly Forum allows innovators to meet, tell their stories, form a community and support one another through the challenges of translating new ideas from the cocktail napkin to hospital operating procedure.

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