Our daughter, Saoirse, was diagnosed with cancer when she was 11 months old. Her care, safety and comfort were our first priorities. When she had a PICC line and later a central line placed to infuse drugs and fluids, we saw a need for a better way to keep these lines safe and secure without using skin-damaging tape and irritating mesh netting. Saoirse was tugging at her lines and trying to pull off the tape, so I handmade a fabric sleeve for her PICC line and a chest wrap for her central line, and she went back to playing and being a kid.
Initially we figured that would be the end of it. …
It was an ABC “Shark Tank” lover’s dream: At this pediatric Innovation Tank moderated by Daymond John, venture capitalists and clinicians fielded pitches from innovators looking to advance their care solution before a packed audience. The contenders:
Over the last year and a half I’ve written 70-plus stories about innovations by doctors, nurses and other staff at Boston Children’s Hospital. I haven’t yet written a story about a patient innovation. But that doesn’t mean that patients and their families aren’t out there innovating.
Case in point: Kezia Fitzgerald saw pretty quickly that there was a problem she might be able to fix. Her daughter Saoirse (pronounced Seer-sha), who had been diagnosed with neuroblastoma, had just had a PICC line put into her arm at Dana-Farber/Children’s Hospital Cancer Center to infuse drugs and fluids. Within a day, Saoirse was tugging at the line, trying to pull off the tape that was keeping it in place. “It was irritating her skin pretty badly,” Kezia says. “She was really uncomfortable.”
Kezia, herself at the time fighting Hodgkin lymphoma (read the family’s story on our sister blog, Thriving),wanted to make her daughter as comfortable as she could. …
Imam was helping care for a baby with particularly complex needs and who needed to have several IV lines inserted. The baby started having complications related to one of those lines, a deeply threaded one called a peripherally inserted central catheter, or PICC line, which had gone astray and had to be repositioned.
Walking out of the hospital at his shift’s end, Imam found himself wishing there were an easy way to visualize, in real time, the progress of lines that advance deep into the body through a child’s veins.
If only we could make these lines light up, he thought to himself….