This past October I attended the Health 2.0 conference, where there was a lot of discussion on the use of niche social networking sites to empower and inform patients, caregivers and families. There is a lot of debate about these communities, but one thing that’s not debatable is their popularity.
MedHelp, for example, has over 12 million monthly users. Patientslikeme – originally designed, by three MIT engineers, for patients with ALS – now has more than 100,000 members and 500 health conditions. Daily Strength has more than 500 communities, including breast cancer, depression, cystic fibrosis, divorce, infertility and parenting. WEGO Health, Alliance Health … the list goes on. Sites like TuDiabetes that let patients share and analyze their health data are starting to be tapped for public health surveillance.