Stories about: special needs

Ingenuity and advocacy: Mom inventor named Boston Children’s Rising Star

Catherine Rose Rising Star Boston Children's Hospital
Catherine Rose with daughter Alexis (Catherine Lacey Photography)

What spurs innovation? Catherine Rose, PhD, MBA, senior product manager for Philips Healthcare Applications, says it was her daughter, Alexis.

In 2010, Alexis, who is visually impaired and profoundly deaf, visited a Philips showroom and was captivated by the interactive displays of colored LED lighting. Intrigued by her daughter’s response to light, Rose called upon her mechanical engineering background and conceptualized and launched LightAide, a teaching tool for children with low vision and cognitive disabilities that uses interactive displays of color to introduce literacy and mathematical concepts.

Read Full Story | Leave a Comment

What is meaningful patient engagement?

"Engagement" can take many forms, not all of them authentic. (Jim Bowen/Flickr)
‘Engagement’ can take many forms, not all of them authentic. (Jim Bowen/Flickr)

Richard Antonelli, MD, is a primary care pediatrician and medical director of Integrated Care and Physician Relations and Outreach at Boston Children’s Hospital. He also co-chairs the Task Force on Care Coordination for Children with Behavioral Health Needs, a group within the Massachusetts Child Health Quality Coalition.

Tools and apps designed to engage children and families in their care are proliferating. But are they meaningful? At its best, patient engagement isn’t just technology that brings lab results and medication reminders to a patient’s or parent’s iPhone. It’s about creating a relationship in which families are able to specify their care needs; clinicians and families learn from each other; and patients and families are able to manage their own care.

Patients and families are not just consumers of health care—they define goals and priorities. Their insights are essential.

A powerful tool for supporting a meaningful family/provider relationship is the Care Map. It was developed by Cristin Lind, parent of a child with special needs, who found herself in the role of care coordinator,

Read Full Story | Leave a Comment